ANSWERS
TO QUESTIONS MOST COMMONLY ASKED ABOUT
AUTISM
By: Mark H. Yeager, Ph.D., FAAIDD
Table
of Contents
1. What is Autism?
2. What causes Autism?
3. Can Autism be cured? Treated?
4. What methods are most effective?
5. Are all individuals with Autism also Mentally Retarded?
6. Why are individuals with Autism often tactilely
defensive?
7. Why do individuals with Autism spin and/or spin
things?
8. Should individuals with Autism take medication?
9. Why do individuals with Autism reject certain foods?
10. Why do individuals with Autism smell of everything?
11. Why do individuals with Autism demonstrate ritualistic
or even compulsive
behaviors?
12. Why do individuals with Autism refuse to hold
or grab things?
13. Why do individuals with Autism crawl under and
between things or hug up
to certain things?
14. Why do individuals with Autism have sudden behavioral
outbursts for no
discernible reason?
15. Why do individuals with Autism have a blank stare
and disregard social
amenities?
16. Why do many individuals with Autism have no speech?
17. Why do many individuals with Autism speak in a
monotone?
18. Why are many individuals with Autism echolalic?
19. How does an Autopsy determine Autism?
20. What is the incidence of occurrence of Autism?
21. Why do individuals with Autism seem to be insensitive
to pain?
22. Why do individuals with Autism disregard danger?
23. Why do some individuals with Autism self-injure?
24. Why do individuals with Autism not mix with other
people?
25. Why are many individuals with Autism hyperactive?
26. Why do individuals with Autism act as if they
are deaf?
27. Why do many individuals with Autism sustain odd
play?
28. Why do individuals with Autism display inappropriate
laughing or crying?
29. Why do individuals with Autism have an inappropriate
attachment to
objects?
30. Why do individuals with Autism isolate themselves?
31. What is it called when an individual with Autism
has a refined talent
despite the inability to do simple tasks?
32. What other disabilities are most often seen in
individuals with Autism?
33. What is meant by Autistic-Like?
34. What is Pervasive Developmental Disorder?
35. Do MMR immunization cause Autism?
1. What is Autism?
It is important to realize that Autism is defined behaviorally and
I.Q. tests are an ineffective means of diagnosis. The Autism Society
of America has recently defined autism as follows:
AUTISM is a severely incapacitating, lifelong developmental disability
that typically appears during the first three years of life. The
results of a neurological disorder that affects functioning of the
brain, Autism and its behavioral symptoms occur in approximately
one to six out of every 1,000 births. Autism is four times more
common in boys than girls. It has been found throughout the world
in families of all racial, ethnic and social backgrounds. No known
factors in the psychological environment of a child have been shown
to cause Autism.
Some behavioral symptoms of Autism include:
(1) Disturbances in the rate of appearance of physical, social and
language skills.
(2) Abnormal responses to sensations. Any one or a combination of
senses or responses are affected: sight, hearing, touch, balance,
smell, taste, reaction to pain, and the way a child holds his or
her body.
(3) Speech and language are absent or delayed, while specific thinking
capabilities may be present.
(4) Abnormal ways of relating to people, objects and events.
Autism occurs by itself or in association with other disorders,
which affect the function of the brain such as viral infections,
metabolic disturbances, and epilepsy. It is important to distinguish
autism from retardation or mental disorders since diagnostic confusion
may result in referral to inappropriate and ineffective treatment
techniques. The severe form of the syndrome may include extreme
self-injurious, repetitive, highly unusual and aggressive behavior.
Special education programs using behavioral methods have proved
to be the most helpful treatment for persons with Autism.
AUTISM IS TREATABLE---Early diagnosis and intervention is vital
to the future development of the child.
(Reference: The Advocate, Vol.24, No.2, Summer 1992)
1B.
What are the "classic" signs or symptoms of Autism and
how do you recognize them?
1. Resist Normal Teaching Methods - Does child self-teach or resist
hand-over-hand attempts? Does child not attend?
2. Inappropriate Laughing & Giggling - Does child laugh or giggle
for no discernable reason or out of context of situation and conversations?
3. Echolalic, No or Limited Speech - Does child repeat what is heard?
Does child seem to avoid speaking?
4. Acts as if Deaf or Painful Hearing - Does child not listen to
instructions or cover ear and/or grimace at certain sounds?
5. Sustained Odd Play - Does child seem preoccupied with certain
motions and insist on performing these motions repetitively? Does
child play with toys in a way the toy is not intended?
6. Uneven Gross/Fine Motor Skills (Apraxic) - Does child appear
to have difficulty maintaining a grip or appears uncoordinated in
running or other physical activities?
7. No Fear of Real Danger - Does child disregard dangerous situations
or places such as highways, oncoming vehicles, hot ovens, heights,
etc.?
8. No or Poor Eye Contact, Blank Stare - Does child appear to deliberately
avoid eye contact or act upset when attempts are made to make eye
contact? Does child blankly stare into space or "through people"?
9. Difficulty in Mixing with other Children - Does child avoid relating
to other children or use inappropriate approaches or speech when
around others? Does child appear to be "rude" to social
amenities?
10. Standoffish Manner, Withdrawn - Does child seek refuge from
other people or environmental sounds? Does child seek isolation
into small spaces?
11. Spins Self or Objects - Does child enjoy spinning or spinning
wheels on a play car or spinning objects of any type?
12. Crying Tantrums - Does child display crying tantrums for no
discernable reason?
13. Inappropriate Attachment to Objects - Does child fixate on unusual
objects such as cans, pictures, or items that are age inappropriate?
14. Extreme Distress for no Discernable Reason - Does child display
active outburst or peaks in hyperactivity for no reason or scream,
cry, or grimace accompanied with aggressive behavior?
15. Not Cuddly or Tactilely Defensive - Does child push away when
being held or touched?
16. Apparent Insensitivity to Pain - Does child not react to events
that obviously would inflict pain?
17. Resist Change in Routine, Likes Sameness - Does child display
inappropriate behavior when typical travel routes or schedules are
changed or disrupted?
18. Indicates Need by Gestures - Does child point or bring things
to you to express a need instead of verbalizing need?
19. Marked Hyperactivity - Is child extremely active such as running,
not sleeping, or unable to sit?
20. Marked Hypoactivity - Does child appear lethargic and without
motivation.
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2.
What causes Autism?
It is not known what causes Autism but recent studies have disclosed
some interesting theories. 1. It is suspected that the administration
of antibiotics to children for such things as ear infections is
responsible for the onset of Autism. 2. Exposure to toxic waste
is another suspected culprit. Research indicates that this may even
be a factor if the exposure occurred as much as three generations
before the birth of the child with Autism. 3. An imbalance of Serotonin
(brain enzyme) has an adverse effect of beta and alpha-receptors,
thereby creating the behaviors that are prevalent in the population
with Autism. 4. An over induction of mercury into the body via immunization
injections is suspected to be a leading cause of the most recent
almost epidemic level of occurrences of autism. There are other
suspected causes but, these are the ones that are gaining the most
attention at this time.
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3.
Can Autism be cured?
No. Treated? Yes. The most successful treatment is early intervention
and behavior modification that addresses the behavior problems.
Other treatments are gaining acceptance as their success rate increases.
1. Auditory Integration Training (Therapy). 2. Dimethylglycine (DMG)
3. Vitamin B6 and Magnesium. 4. Mercury Chelation 5. Gluten Free/
Casein Free Diets 6. Other Vitamin and Nutritional Supplements
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4.
What methods are most effective?
At this time the most effective methods showing the most profound
positive results is Behavior Modification often paired with some
of the treatments listed in number 3.
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5.
Are all individuals with Autism also Mentally Retarded?
No. Some studies suggest that as few as 40% of the population with
Autism are also Mentally Retarded. It should be pointed out that
any attempt at clarifying this issue is ambiguous due to the fact
that there is no effective assessment process that accurately rules
out Mental Retardation. It is also important for professionals to
realize that programs for the individual with Mental Retardation
will not work for those individuals with Autism.
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6.
Why are individuals with Autism often tactilely
defensive?
(not cuddly) To put it simply, it is sometimes painful or uncomfortable
for them to be touched. This is a response to gain control and comfort
over their environment. In time individuals do learn to cope with
their tactile difficulties. All children however are not tactiley
defensive.
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7.
Why do individuals with Autism spin and/or spin
things?
Self-spinning is a self-stimulation activity that stimulates the
vestibular system in the body; a feeling that for some reason is
appealing. Object spinning is again a stimulating activity that
seems to visually pacify a need. The problem arises with these behaviors
because the individual tends to fixate on the behavior and it can
become impossible to shift his attention to anything else.
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8.
Should individuals with Autism take medication?
Maybe. There are many drugs that can be effective and many that
are not. There is no "miracle drug" or even any one that
consistently works the same on all individuals. A physician that
is knowledgeable about Autism should be consulted to address this
type of treatment, however, there is no abundance of knowledgeable
physicians. Documentation of behaviors before and after onset of
medical intervention is important to the success of medical strategies.
The physician alone should not have the only input into the decision
for treatment strategies. Input should be sought from parents, teachers,
counselors, psychologists and anyone else who observes behaviors
and has the individual’s best interest in mind. What are the
most effective medications? The drugs that show the most promise
are Nystatin, Beta Blockers (Propranolol, Corgard), Tegretol, Fenfluramine
(Pondimin), Naltrexone, Prozac, Mellaril, Tofronil (Imipramine),
Zyprexa, Aderal, and Geodon. Contrary to popular belief Ritalin
is not a drug of choice for persons with ASD.
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9.
Why do individuals with Autism reject certain foods?
Again, quite simply, they are unappealing to them. In many cases
even repulsive. It is important to try to introduce these and other
new items to their diet. Diet peculiarities are common among this
group.
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10.
Why do some individuals with Autism smell of everything?
To establish a preference. Those that smell good many times become
fixations, those that smell bad become antecedents to behavior problems.
Remember, just because we think something smells good or bad does
not have any bearing on the person with Autism's interpretation.
They often are delighted by smells that are offensive to us. (i.e.
feces, urine, ammonia, etc.)
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11.
Why do individuals with Autism demonstrate ritualistic
or even compulsive behaviors?
This too is an expression of preference. Sameness is an important
part of their attempt to gain control over their environment. Once
a successful routine is established the person with Autism will
follow it to a tee. It is most important to warn the person with
Autism of upcoming changes in their schedules or staff changes.
Many times, this will head off behavior problems. Structured programming
and your ability to be consistent will help ensure success for a
person with Autism.
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12.
Why do individuals with Autism refuse to hold or
grab things?
There are two possibilities for this behavior. 1. The object may
be tactilely offensive and the response is to refuse to hold the
object. 2. The individual may have apraxia, which effects their
ability to motor plan and maintain a grasp.
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13.
Why do individuals with Autism crawl under and
between things or hug up to certain things?
The most common belief is that this serves as a sensory deprivation
or calming method that many individuals have learned. This theory
is advocated by Temple Grandin, Ph.D., a recovering person with
Autism, who is in the business of creating machines that induce
the same effect on animals. This is also an effort to establish
control over environmental changes.
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14.
Why do individuals with Autism have sudden behavioral
outbursts for no discernible reason?
This is typically a response to some environmental factor that the
individual found disturbing. Many times, we can't even perceive
the problem. Why? Due to the hyper-sensory characteristic that most
individuals with Autism possess, they can actually smell, hear,
see, and feel things that we cannot, because of our inferior sensory
system.
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15.
Why do individuals with Autism have a blank stare
and disregard social amenities?
The truth of this issue is that these behaviors actually serve no
purpose except to make our relationships with others more pleasant.
For some reason, which remains a mystery, the individual with Autism
does not conform to the conventional need to interact with others.
This is often displayed as such” rude" behaviors as staring,
walking through conversations, walking over people and disregard
of other social expectations of society. This is often the most
confining aspect of Autism. "Typical People" just will
not accept them as they are, but demand conformance to social amenities
thereby leaving no place in our society for this group of people.
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16.
Why do many individuals with Autism have no speech?
This is secondary to apraxia in many cases. It is also believed,
in some cases, that the inability to organize language and communication
thoughts attribute to minimal speech. It is further believed that
some individuals even choose not to speak.
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17.
Why do many individuals with Autism speak in a
monotone?
The most common belief for this behavior is that the sound of their
own voice actually hurts their hypersensitive auditory system. Once
they find a tone that is not painful, they stick to it, which results
in monotone speech. This could also be a cause for no speech, in
that an individual may not be able to find a tone that is not painful.
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18.
Why are many individuals with Autism echolalic?
Due to their inability to plan and organize communication thoughts
and phrases and their desire to speak, many individuals simply echo
what they hear and circumvent the planning process. The problem
with this is that it typically serves only as nonfunctional speech
and is frustrating to parents and programmers. It should be viewed
as a starting point for functional speech and they should be encouraged
not to echo. This is one behavior that Auditory Integration Training
has proven effective in extinguishing.
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19.
How does an Autopsy determine Autism?
Autopsies of known individuals with Autism have shown basically
three things. 1. Unusual but inconsistent brain structure. 2. Unusually
small brain stems. 3. Unusually high number of neurons (brain cells)
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20.
What is the incidence of occurrence of Autism?
One to six out of every 1,000 births and 4 to 1 male to female.
An interesting note is that most individuals with Autism that establish
handedness are 60% more likely to be left-handed.
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21.
Why do individuals with Autism seem to be insensitive
to pain?
This is probably one of the biggest mysteries of Autism. Little
study has been done in the area and what has been done indicates
almost no answers. The most likely reason appears to have something
to do with their sensory interpretations of all stimuli being "mixed
up" so that pain is actually being felt but not recognized
and responded to in a traditional manner.
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22.
Why do individuals with Autism disregard danger?
Due to their insensitivity to pain, most individuals with Autism
do not concern themselves with the trivial aspect of possible danger.
Recognition of danger is a social amenity that requires motor planning
in response to situational interpretation, a skill that for some
reason is either absent or inhibited in individuals with Autism.
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23.
Why do some individuals with Autism self-injure?
For the same reason that other developmentally disabled individuals
do. It serves as either an attention seeking behavior or it is pleasing
to that individual. Another possibility is that individuals with
Autism lack self-identity. This, combined with a nontypical response
to pain, can actually present the internal interpretation that they
are not self-injuring but being aggressive toward someone else.
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24.
Why do individuals with Autism not mix with other
people?
This again is a social amenity that serves no purpose for the person
with Autism. In most cases this mixing is only frustrating and intrusive.
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25.
Why are many individuals with Autism hyperactive?
This can be explained by a couple of possibilities. 1. They produce
more than usual levels of epinephrine and serotonin, which will
cause the body to become agitated. The person with Autism reacts
to this by demonstrating sudden bursts of energy such as running,
jumping and hand flapping. Their lack of motor planning and self-restraint
makes it impossible for them to control these outbursts. 2. The
need to remove themselves from areas where there may be offensive
sounds and odors cause them to appear to continuously be seeking
refuge. Because refuge from these sounds and odors are almost impossible
to find in our environment the search is without end. Result....a
never-ending hunt for solitude.
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26.
Why do individuals with Autism act as if they are
deaf?
Many individuals with Autism have learned to "tune-out"
painful or undesirable sounds. Because of their inability to shift
attention from one thing to another, they appear deaf because their
preoccupation of "tuning-out" consumes all incoming sounds
and they do not react to sudden sounds or instructions. It is important
when addressing an individual with Autism to try to place yourself
in their line of vision in order to enhance their ability to shift
attention.
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27.
Why do many individuals with Autism sustain odd
play?
This can be explained by several reasons. 1. Again the sameness
of repetitive, compulsive, and obsessive movement is appealing.
2. Many activities of play are again dictated by social amenities,
a need that most individuals with Autism do not possess. 3. Some
odd play is actually a fixation on an item in a non-conventional
manner as interpreted by society.
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28.
Why do individuals with Autism display inappropriate
laughing or crying?
This most probably is a somewhat appropriate response to something
we do not hear or witness. Many individuals laugh or cry out loud
to thoughts that cross their mind. Since it did not occur in a conventional
sequence we interpret it as inappropriate. The inappropriateness
of this is actually in the poor timing and interpretation of the
behavior.
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29.
Why do individuals with Autism have an inappropriate
attachment to objects?
This again is a fixation on something appealing to the individual.
Most everyone has an attachment to some type of object. We are just
more discreet about our behavior. An individual with Autism, lacks
the ability to interpret the social inappropriateness of this behavior.
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30.
Why do individuals with Autism isolate themselves?
This again is a defense mechanism to seek refuge from distressing
sounds and odors.
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31.
What is it called when an individual with Autism
has a refined talent despite the inability to do simple tasks?
Autistic Savant.
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32.
What other disabilities are most often seen in
individuals with Autism?
Mental Retardation, Obsessive-Compulsive Disorder, Fragile-X Syndrome,
Asperger Syndrome, Bi-Polar Disorder and Manic Depressive, just
to name a few.
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33.
What is meant by Autistic-Like?
This is often used as a diagnostic term to describe an individual
that exhibits some behaviors that are identified as Autistic but
not enough to constitute a diagnosis of Autism. It is at best an
attempt to describe confusing behaviors in a person with developmental
disabilities.
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34.
What is Pervasive Developmental Disorder?
This is the general category that Autism falls under. It is used
most often with children. The Autism Society of America disagrees
with its use and is encouraging the American Psychological Association
to separate Autism into a category of its own in the DSM-IV upon
its publication.
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35.
Do immunizations cause Autism?
The vote is still out. It appears that the research is pointing
to evidence that there is some connection. It seems that the preservative
in many vaccines contains enough mercury to be dangerous to children
with a pre-disposition and possibly even those that do not. The
puzzle lies in the child’s inability to eliminate heavy metals
from their body.
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The
field of Autism and the strategies to help this population change
daily. It is most important that we keep in contact and get organized
so that these individuals can be better served. Your input and help
is desperately needed. If you have any other questions, ideas, or
need assistance, please feel free to contact me by phone or mail.
We are attempting to establish a network of parents and professionals
to better serve individuals with autism.
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For more information contact:
Mark
H. Yeager, Ph.D. , FAAIDD
Director
Division of Autism Spectrum Disorders
Mississippi Department of Mental Health
mark.yeager@dmh.state.ms.us
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